Day 58 Post Liver Transplant

Came home 3 weeks ago tomorrow. It's been tough, but i'm starting to come around. Went to a clinic appointment on Monday. Dr. Book says that things look great. Kidneys are almost back to normal. Liver numbers are within normal range. I saw Dr. Meyers as well and she thinks its time to do a skin-graph. We are supposed to meet with a plastic surgeon next Monday. I'm getting stronger everyday. And, my mental status is starting to get back to normal. Hopefully things will get back to normal soon.

It's My Birthday

Yesterday was my birthday and it was an ok day. I'm still not wanting to respond to anybody, but things are starting to look better. Mom and dad, Papa and Grandma Lora all helped to put together a successful birthday party for me. It seemed to lift my spirits to see all the friends, family, nurses and doctors come in to see me. That means alot. Dr. Meyers and Dr. Vanderworf came and had some cake after they finished another liver transplant. I guess that makes me important. The doctors are talking about trying to send me home on Tuesday after they take the dialysis catheter out on Monday. I am excited to go home.

Sergio is such a good brother to help me.

More Birthday Pictures

Cassie and Sergio helped me open my presents.

Day 37 Post Liver Transplant HAPPY BIRTHDAY TO ME!

Dr. Book came to see me on my birthday. I was happy to see her.

Day 34 Post Liver Transplant

I Went to the floor today, But i'm still not very excited anyway. I still am acting a little depressed still, but the doctors think it might be because of some of the medications i am on that they are going to stop anyway. Cassie is coming home tomorrow from her vacation, I am excited to see her. I've been off dialysis for six days now and the doctors think that my kidneys are going to recover and I won't need it anymore. Hopefully i can go home soon.

Day 33 Post Liver Transplant

I got to go outside today. I seem to be a little depressed, but going outside seemed to lift my spirits a little. Doctors were going to send me to the floor today, but they didn't have enough room for me on the team. Hopefully I will be able to go tomorrow.

Day 31 Post Liver Transplant

Mom buzzed my hair today. Do I look excited or what?

Today is a good day. Tonite will be the third day off of dialysis. It's going ok. They are talking about letting me get out of the ICU soon and going to the floor. Just one step closer to getting to go home.

Here I am doing some sand art with physical therapy.

Here I am with my cool brother on Easter.

Day 29 Post Liver Transplant

Great Day! They decided to not do the dialysis tonight and see how my kidneys do. As far as tomorrow, we will see what happens, but things are going in the right direction. I got another central line out today. YAY! The only bad thing was that they put in a feeding tube in to give me more nutrition and to try to wake my intestines up. But, that is small compared to everything else.

Day 27 Post Liver Transplant (EASTER)

Happy Easter! Today I got my Easter basket and I liked everything that was in it. I also got up and walked a little bit and sat out by the window for about an hour and a half. Papa, Grandma Lora, and Sergio came to visit too. I was glad to see them. Sergio is going to stay with us for a couple of days, at least I will have somebody to talk to now.

Day 25 Post Liver Transplant

Having a hard day. I'm in a lot of pain so they started me back on a pain medicine drip. My pee slowed down because the prograf level(anti-regection drug) was high and it affects the kidneys. So, they are holding off on the prograf for right now. Other than that things are still heading in the right direction.

I Love my MOMMY.

Here I am with a pretty smile for the camera. LOOKIN GOOD!

Day 24 Post Liver Transplant

I got to sit outside my room today by the big window. I got my hair washed and the occupational therapy lady came to play ball with me and I had fun.

Here i am with my two favorite girls!

Don't i look nice and relaxed?

Day 23 Post Liver Transplant

Having another good day! Not really any changes, but i got twice today. Boy, it's alot of work!

Did great throughout the surgery and came back without the breathing tube. YAY! Don't I look sweet. They are talking about letting me start drinking Diet Coke, YUM! And, maybe start some tube feeding for something a little nutritous.

I sat for about 30 minutes, YAY!

Day 22 Post Liver Transplant

Having a great day! Got out of bed and took a couple of steps to the chair to sit for about 30 minutes. Later went to surgery to replace an infected dialysis catheter. Did great came back without the breathing tube so it looks like we are making some progress.

Day 21 Post Liver Transplant

Did great through the night without the breathing tube, Just have a big nasal canula. With lots of help I sat up on the side of my bed for the first time in 3 weeks! Still peeing a little more everyday. Everything thing else seems to be getting better slowly but surely.

Day 20 Post Liver Transplant

They took the breathing tube out today even though it doesn't show in this picture. It happened later in the afternoon. Nothing else has really changed.

Here is my goofy family that came to visit me today. Aren't they all goofy looking especially the old man in the back and on the left!?

Day19 Post Liver Transplant

Today was a good day! I started peeing with some help from Lasix. My breathing is getting better so hopefully they can take the breathing tube out soon. Papa, Grandma Lora, Cassie, and Sergio came to visit me today. I was excited to see them, I can't wait till I get the breathing tube out and can be more awake to really enjoy them.

Day 18 Post Liver Transplant

Just hangin out. Still have the breathing tube and i'm not very happy about it. They want to keep me a little fluid possitive hoping it make my kidneys want to work, but it doesn't make my lungs very happy to be wet. Maybe in the next couple of days things will change. Still running a little fever, but nobody seems to be concerned at this point.

Day 17 Post Liver Transplant

I love my hospital baby. Things are about the same. Still running a fever off and on, and i'm still not peeing. Doctors are starting to worry about my Kidneys, buy they still have some hope that it is still reversable.

Wednesday March 24

I got my wound vac dressing changed. They can change it in my room instead of going to operating room to get it changed.

Day 16 Post Liver Transplant

Started running another fever today, not sure why. Other than that things are looking about the same. Mom and Dad went home to visit the family in Logan. It's Cassie's Birthday, HOORAY! She is already 18 years old. Just sorry I couldn't be there to help the celebration along. Mom and Dad are coming back to be with me tomorrow. Other than that things are about the same for right now.

This is me giving a big thumbs up!

This is me trying to give the camera a big smile.

Day 15 Post Liver Transplant

Good news! Infection seems to be under control. Maybe won't have to go back to surgery for at least 2 or 3 weeks. Waiting for the swelling of the liver to go down so they can close my abdomen. Still a little aggitated today, would really like to pull all my tubes out and be done with it all, but i'm still hangin in there. The next thing we need to work on is trying to get my kidneys to start working again, they've been through alot. I'm still on the breathing tube from surgery last night, but since they waited so long to take me to surgery dialysis didn't get started till really late and now i am very fluid positive. So, until they can get some fluid off with the dialysis, I won't be able to breath on my own. Seem to be more comfortabe since they gave more pain medication through an i.v. drip.

This is me with my favorite nurse, Andrea.

Day 14 Post Liver Transplant

Things are about the same today. I'm just waiting to go to surgery. Can't wait to see what the doctor says about my infections.

This is me with papa Charles, but i am much better looking than he is.

This is me with my awesome brother, Sergio.

This is me with my sister, Cassie. Aren't we adorable!

This is me after getting the breathing tube out on Saturday.

Day 13 Post Liver Transplant

Not having such a good day, not sure what the problem is. Doctors say things are looking good from a medical stand point, but i'm just not feelilng very good. Going in for another wash out tomorrow. I guess we will see what happens. Hope things are better and the infections are under control. Cassie and Sergio went home today. Was sad to see them leave.

Day 12 Post Liver Transplamt

I got off the breathing tube today and they put me on a high pressure breathing mask. So far i'm doing well weth my breathing, but it is hard to get through the therapy because my tummy hurts, but it's the price i have to pay for my recovery. My brother and sister came to visit and I was excited to see them. Papa and Grandma Lora came too and I was also excited to see them.

Day 11 Post Liver Transplant

Went in for another wash out and the doctor says things look slightly better which is better than being the same or worse. Still have the breathing tube in, but still awake and communicating. Looks like they are going to take it out sometime today. We will see how I do with that. I am vey excited that my brother and sister are coming tomorrow to see me, hope they are too.

Day 10 Post Liver Transplant

This is me again looking pretty for the camera!

Yesterday went for another clean out and they found bowel perferations and lots of infection. Just one of the set backs that come with the territory. Hope things are under control but for right now i am doing ok. I am back on the breathing tube but have been awake and communicating well. tomorrow is another day.

I took a picture with my mom, aren't we cute!

Day 9 of my liver transplant

This is me and my dad. Aren't we cute together!

I am on day 9 of my transplant today. I'm breathing much better today and a little more comfortable overall. I am trying to smile for my mom to take my picture even though it doesn't look like it.

Day 8 Post Liver Transplant

Was taken off the breathing tube yesterday. Having a hard time breathing but holding my own.